Day 19

Just a quick (and late) update tonight.

After a 2 hour drive into Randwick today it was really nice to get hugs with Hannah again who is impressing the nurses by lifting her head off my chest all on her own. She is really going strong at the moment and her biggest problem is coping with the milk which is now increased to over 70mls a day.

Ellie is still struggling and was due to have a long line put back in today but everything was put on hold when they were worried about her over sized and hard stomach. After another x-ray and assessment she seems to be okay and the problem was not as bad as first thought. This girl has had a new challenge for us just about every day of her life so far…..we are hoping she gets it all out of the way before hitting her teenage years.

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Ellie sporting two cannulas and posing under a blue light

*Matt

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