Day 66

Hannah is doing really well. Her ability to open her bowels has improved but still isn’t 100%. She drank a big 65ml bottle today and it getting hungry and wanting to bottle, which are all great signs.

Ellie is adorable, I still love seeing her little head. She is doing well with her breathing, but is really suffering with her reflux. She is obviously in pain and gagging and needing oxygen support during her reflux episodes. I really feel bad for her, we can only hope that her medication begins working a bit better and that everything else keeps progressing and improving so she can get bigger and be taken off some of her other 9 medications, I feel like that will help her tummy too.

*Deb

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