Well it’s 5pm and the Humphreys girls are shattered. Ellie was working a little harder again today and then at the end of hugs (around 1pm) had a gagging vomit. They were on the verge of reintubating her when she picked herself back up (I was asked to leave just before she picked herself back up and let me tell you it wasn’t just Ellie’s reflux mucking up).
She had bloods taken and is back on antibiotics. After she settled down she managed to pull her special feeding tube out and then while a regular one was being put in she ripped out her fresh cannula. New cannula has been put in, she is almost in air – still working hard with her breathing but a little more relaxed and saturating well.
Like I said we are exhausted.