It was a week ago I was boasting how nice a visit I had with Ellie, how alert and interactive she was. Then it was only three days later and we were being called in on the Thursday night as she was crashing yet again.
Today was another really nice visit. Ellie was very awake again and quite interactive. We went from talking to each other (she mainly grunts at me), reading stories again and having some hugs. As much as last weeks experience makes me hesitant to be so excited this time, there is a little more hope as Ellie’s milk and cares have been changed to avoid any more aspirations. The doctors are still on a plan to strengthen her for the operation that will hopefully fix her aspirations and hernias at the same time.
Late Update – Deb just called in to check on Ellie and she is continuing with her reputation as the cord puller. Even though one hand is permanently pinned to the bed and the other one is covered with a sock, she has managed to pull out yet another cannula! This time she used one of her feet to kick it out. We can’t wait to channel this determination in a positive way as she grows up!