Ellie just lasted on high flow long enough to finish her test early this morning. She was exhausted and agitated today after a big day yesterday and a long night with not much sleep yesterday.
I had another family meeting with the doctors today. The CICU and NICU doctors have been chatting and the CICU doctors want Ellie to have the fundoplication, this is a procedure that tightens the sphincter at the top of her stomach to stop her vomiting. She will also get her hernias fixed and a PEG line- this is a feeding tube that goes through her abdomen straight into her stomach. This will save her having a feeding tube down her nose. It can last a couple of years and then will be removed once Ellie has out grown her reflux and has more energy to drink and eat.
All of this could happen at any stage from now. The biggest problem with this will be Ellie having to go back on to a ventilator.