So many of the nurses in the NICU are absolutely amazing. I keep asking them to come home with me when Ellie comes home, as much as they love Ellie surprisingly they aren’t super keen to be on duty 24/7 and not be paid.
Ellie is doing really well. Although you have to read that in context. I was asked today how Ellie was going and I said really well. Is she home? No. Is she off breathing support? No. Is she having feeds? No. But she is acting like a baby, waking and demanding hugs at 430 in the afternoon, not crying but whinging if her nurse isn’t in her direct line of sight. Sleeping at night and have awake times during the day. Screaming if her nappy is dirty. The last two days she is looking really comfortable with her breathing as well. She looks good and for Ellie she is doing really well. She is up to 3580grams and has put on weight at all three weigh ins this week. She is just shy of being in the 3rd percentile for her corrected age. She has come such a long way.
Tonight’s photo sesh will be a reminder to us all of how far Ellie has come and how crazy her journey has been, thanks for your support x