So Ellie gained weight for her 6 month birthday she is now 3.69kgs (only 100g off Levi’s birth weight and 200 off Nate’s). I also popped Hannah on the scales she is about 6kgs. The only medical changes today is Ellie has gone from her $55,000 NAVA machine giving her CPAP to a bubble CPAP machine that is worth a fraction of the price (it was not swapped because of the price – it was swapped to ensure she liked it before her move to CICU). I also got a tour of the CICU or PICU with one of the nurses today and got to meet a couple of the Mums who are currently there with their babies. I almost forgot, Ellie had another (it’s been a little while) heart echo today, just because breathing problems are sometimes due to heart problems. It was fine and all looks great as expected.
In the last 6 months…
$3,421.00 was raised by many of you for the NICU through the Running for Premature Babies Foundation and Roy running a half marathon. A plaque was put up a couple of weeks ago in recognition of how much this foundation has done for the NICU. Many of the machines Hannah and Ellie used and the research they benefited from was actually only made available because of the amazing work Running for Premature Babies does.
111 blood, plasma and platelet donations have been made through the RED25 group, ‘Hannah Rose and Ellie Grace’ saving an amazing 333 lives. This is all due to my sister Helen’s initiative and motivation and to everyone that rolled up their sleeve and gave some of their amazing blood away.
Hannah has gone 1 day without seeing a blood relative and Ellie has gone 2 or 3. Many trips have been made in and out of Randwick, I would hate to think how many hundreds of hours have been spend in cars by Matt and I, family and friends visiting and giving us lifts.
The girls have had hundreds and hundreds of procedures and scans and cannulas and xrays between them. Ellie alone has had 63 xrays – not including any head, heart and belly ultrasounds and scans. They have had 100s of blood tests and heel pricks – so many that Ellie has scarred and calloused heels, Hannah has scars on her ankles and legs and they both have scars on the tops of their hands. Their stays in hospital and numerous procedures have cost over $1 million.
We have had approximately 70 meals made more us, as well as a number of grocery and fruit deliveries. The boys combined have been babysat for all or part of about 80 days.
We have made 198 posts to this blog, it has been viewed 69,097 times by 12,568 visitors.
The girls have been in the media 6 times (unless I am forgetting one – The Catholic Weekly x2, Mamamia, The Red Cross Blood Bank, channel 9 news and the paper last weekend). All in an effort to raise funds for the NICU and to encourage people to donate blood.
Special occasions that have passed include Easter, Mother’s Day, Matt’s birthday, my birthday, our Wedding anniversary, Father’s Day, Levi’s birthday and Nate’s birthday.
Ellie has gained 2995grams, she is now over 5 times her birth weight. Hannah has gained just shy of 5kgs, she is also now just over 5 times her birth weight.
The girls have had approximately 1 zillion photos taken of them by us and the amazing staff at the NICU.
Ummmmm……. there really has been a lot happen over the last 6 months, it is half a year. In 5 days the girls will have been out in the big wide world for as long as they were inside of me.
Thank you to EVERYONE who has helped contribute to helping all 6 of us get through the last six months – from the amazing medical staff who have kept our babies alive, to the donations of money – blood – food, to our parents for the baby sitting, to the people who sit down with me and chat, to the amazing supporters who read our blog and encourage us to keep going, to the many amazing people who have and still are praying for us and Ellie. And especially to the people who have stuck with us – 6 months is a long time, having 3 kids at home and one is hospital has to some degree become a routine to us, but that doesn’t mean it is easy. So thank you to those that help us and try to understand what this journey is like for all of us.
If you want to, share something significant that has happened to you in the last 6 months or just something that means something to you xx