Congratulations Hannah and Ellie for making 200 days, something that we were told would be impossible a few times along our journey.
It was a fairly normal visit with a good amount of up time and chats, as well as some sleepy hugs. Ellie is really starting to grow up and interact. She is still breathing well but her pressure did need to go back up to 7 as she was getting a little tired. Tomorrow is her last full day in Royal Womans Hospital and I can’t begin to think of all the people who have been instrumental in Ellie’s journey. We are going to miss the security of all the familiar faces who have become so much more than nurses and doctors. I can only imagine how much more they all mean to Ellie.
This week was particularly difficult. My last week of work before break and I decided to make it more interesting by crashing the car on the way to the hospital on Wed. (One too many tired trips). We are all fine but I wanted to mention it to give praise to Deb who has been so strong, supportive and amazing considering the extra challenges. Everything has actually worked out really well, praise God, but Deb was amazing, especially when it seemed like it was going to be much worse than it was.
Thank you to the marathon supporters who are still just as supportive as they were at day 1. The novelty of our story has well and truly worn off and we hope Ellie and our family can go on to do something worthy of the support we have received.