What a day!
After a lot of waiting around we left the NICU at around 1230pm and shuffled through the corridors to the childrens hospital in her special bed (donated by Roger Federer!)
A few things became obvious shortly after arriving.
- The nurses and staff are just as amazing. Twin babies are a novelty at the childrens hospital and the girls were very happy to have a lot of attention today
- The CICU has so many benefits for Ellie. We were visited by childrens entertainers who have a personal concert for Ellie and made her balloon flowers. She was also visited by a dietician and a play therapist. I also found out there are regular music therapists and develepmental teams.
- The boys are going to love Ellie’s new home. There are several play locations nearby as well as the starlight foundation room (which is staffed with people to help them play and keep them entertained).
They also have some new ideas and technology to try to help Ellie’s breathing which is great. For now the Trachy is on a short hold while they try a few ideas.