It was nice to see Ellie looking a bit better this morning. She still isn’t quite herself but I did get one small half smile out of her today. She slept better last night and had a few good naps today. They have taped up her feeding tube and are hoping it lasts a couple more days so that she can just rest for a few days. There have been so many changes to her surroundings and treatments they want to give her a few days rest.
The reality of the differences between the NICU and CICU are becoming more and more apparent. It is also becoming very obvious it is going to take some time for Matt and I to adjust to them. Not being involved in doctors rounds is probably the biggest adjustment, I feel quite distanced from her medical treatment at the moment. We just have to adjust to the routines in the CICU and adapt our interactions to get the information we are use to having access too.
We hope you all have a beautiful spring weekend.