A late and photo-less post tonight.
Ellie had quite a tough day today. She spent the first half of my visit thrashing and crying and the second half exhausted and sleepy. Still not sure exactly what was agitating her so much, some of the guesses were band wind, congestion in her nose and a bad fitting on her breathing mask.
It is very quiet in the CICU on weekends (well at least it was today) and I get the impression no big decisions or discussion will happen until Monday when more people are on deck. It hasn’t been a week yet and we are already missing the care and friendship we left at the NICU, but we are also trying to settle in here and get to know the best way to make CICU work for Ellie.