Day 249

Ellie had a really good day today and was happy to see all the visitors  that came to see her (i didn’t have the heart to tell her they were here for Hannah’s baptism as well).

We are in a bit of a medical progress lull at the moment. There will be a meeting in the next few days to look at Ellie’s breathing charts and discuss options forward with everyone. It has been really nice having her so settled and generally content. The two most difficult parts of her days currently are the occasional morning vomit and her clexane injections. Compared to what she used to go through on a daily basis this is pretty manageable for our princess warrior.

Hannah’s baptism went well today, but I will save that for another post as I don’t have the cute photos on my phone (plus it was special enough to warrant its own post).



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