I forgot to blog til now. Hannah is up (9:30pm)……. so it will be quick.
Ellie lost a little weight yesterday so her feed volume has gone up to 140mls/kg/day. She is having a download tonight (her Massimo – breathing suration monitor- will be taken away tomorrow to be assessed by the sleep team), this is being done with her in 27% oxygen to see if it is safe for her to stay at that level. Each week some part of her breathing support will be reduced and she will be assessed on how well she handles it.