As always, Saturday is Ellie and Daddy’s reunion day (after not seeing each other all week).
Medically, she is doing brilliantly. She is handling the lower pressure (6) really well and doesn’t seem to be working too hard. Her CO2 level in the CAP gas was 43, which is within the sleep teams desired range. He core strength is improving exponentially and she is feeding better and better with solids.
We had a great time catching up together. Today I was especially appreciating all the little things that I took for granted with the two boys. Simple little things, that we were told would likely not be possible for Ellie. Things like: