Day 347

Ellie had a good day and we are quite excited (and anxious) to see how she does on her low flow trial tomorrow. If she can manage it, it is a huge step forward to coming home sooner rather than later. I am trying to find a balance between positive thinking, prayerful hope and preparing myself to be patient if she needs more time.

Today I read Ellie the story that we have read her since she was born. It struck me, that many times in the NICU I would read it to her and wonder if she would ever be able to listen and be involved. Now I am battling to get through a page without her grabbing the book and trying her best to be involved as she rips it out of my hands!

 

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Ellie loves going outside and watching the cars drive past on her short breaks.

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One thought on “Day 347

  1. “Oh, the Places You’ll Go” ? Pretty soon, hopefully, the very exciting place called HOME !
    G’luck with the low flow trial, Ellie – will send some extra positive thoughts your way today x

    Like

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