Day 355

Ellie’s doctor came for a visit today and was really happy with her progress onto Low Flow. We went down to 500ml and he wants to keep going down 100mls per day until we get to 200, then wait over the wknd and have a sleep study done on the Tuesday of next week. One extra hurdle for Ellie will be her immunisations. Hannah had hers today and is having a bit of a reaction.

Today Ellie was a lively and happy as ever. She is no longer happy with lying down for long periods of time and does whatever she can to convince you to sit her up. As soon as you sit her up, her head darts straight towards the nurses desk to see what exciting things are happening outside her door. I have been making special efforts to tell Ellie regularly that she cannot bring all her friends home with her, but I am not sure if she has been listening.

17124636_10154278277795808_1984653077_n.jpg

The musical orbs are Ellie’s favourite table top toy

 

Advertisements

One thought on “Day 355

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s