When I came in yesterday for yet another weekend stuck in the hospital, I was feeling a little bit sorry for myself. Then one of the nurses came in all smiles because of some good news. The kidney transplant from one of the kids next door had just finished and was successful. The father had given a kidney to his son/daughter (I didn’t know the patient). Immediately, my heart went out to them. What a terrible situation, but at the same time an amazing gesture of love. All of a sudden, my sacrifice of time was put in perspective as I considered the physical and ongoing sacrifice this father had willingly made. This kind of thing happens semi regularly at the children’s hospital, it is a shame our news reports on mostly bad things when there are so many amazingly good things happening without us realising.
Sacrifice is more than losing something, it is losing something for a greater good. The times when I can connect to the greater good, in this case the amazing Ellie, then the act of sacrifice becomes so much easier to fulfil. Ellie is worth every cent of the million+ dollars that has probably been spent on her (before you panic, not paid personally by us) and even the time sacrificed beside her bed has been so special and life giving in itself. The past year is something we will never wish away or regret, it is now part of who we are and who we will be from here on.
Ellie is looking great. I took her up to the shops for the first time today (my first time) and I was considering what she must think of the hundreds of people busying themselves around the place. Nothing much will happen medically over the weekend, but she looks as bright as ever on 200mls of low flow.